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Summary of the Lifespan Respite Act
(PL109-442):

Use of Funds:
The Act authorizes competitive grants to Aging and Disability Resource Centers in collaboration with a public or private non-profit state respite coalition or organization to make quality respite available and accessible to family caregivers regardless of age or disability. The law allows grantees to identify, coordinate and build on federal, state and local respite resources and funding streams, and would help support, expand and streamline planned and emergency respite, provider recruitment and training, and caregiver training. Grantees will have the option of using funds for training programs for family caregivers in making informed decisions about respite services; for other services essential to the provision of respite; and for training and education for new caregivers.
Timelines for Implementation

What is a Lifespan Respite Program?
A lifespan respite program provides a coordinated system of accessible, community-based respite care services for family caregivers of children and adults with special needs.

Lead Agency Eligibility

Funds would be provided on a competitive grant basis to designated state agencies appointed by the Governor. The state lead entity must involve an Aging and Disability Resource Center and work in collaboration with a public or private nonprofit statewide respite coalition or organization (memorandum of agreement required in application). Priority would be given to applicants who show the greatest likelihood of implementing or enhancing lifespan respite care statewide.
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Who Can Access Lifespan Respite Programs?
Caregivers who are family members, foster parents, or other adults providing unpaid (clarified in report language) care for an adult or child with a special need may access these programs. Adult with special need is defined broadly as a person 18 years of age or older who requires care or supervision to meet the person's basic needs, to prevent physical self-injury or injury to others, or to avoid placement in an institutional facility. A child with a special need is a person less than 18 years of age who requires care or supervision beyond that required of children generally to meet the child's basic needs or prevent physical self-injury or injury to others.

Application Submission
The Governor submits application on behalf of the State Agency that administers the Older American's Act, the State's Medicaid program, or another agency designated by the Governor.

Federal Administration
Secretary of Health and Human Services is required to work in cooperation with the National Family Caregiver Support Program Officer of the Administration on Aging and other respite care programs within the Department to ensure coordination of respite for family caregivers

Funding Authorization:
$30 million for FY 07, $40 million for FY 08, $53.3 million for FY 09, $71.1 million for FY 2010 and $94.8 for FY 2011

National Resource Center:
Establishes National Resource Center on Lifespan Respite Care

GAO Report:
A GAO report on Lifespan Respite Programs is required by 2011.



President Signs Lifespan Respite Care Act,
Washington, DC (December 21, 2006)(Click here for a copy of PL 109-442)


Aging and Disability Resource Centers

Since 2003, 43 states have received Aging and Disability Resource Center initiative grants. Click the link that follows to view a map that shows the states receiving ADRC awards in 2003, 2004 and 2005 as well as summaries of each state's proposed project. The ADRC projects provide a good opportunity for collaboration! http://www.adrc-tae.org/tiki-index.php?page=PublicHomePage

The Mission of the National Respite Coalition

The Mission of the ARCH National Respite Coalition is to secure quality, accessible, planned and crisis respite services for all families and caregivers in need of such services in order to strengthen and stabilize families, and enhance child and adult safety.

The Coalition works to achieve these goals by preserving and promoting respite in policy and programs at the national, state, and local levels. For more information on NRC’s activities, write the National Respite Coalition at 4016 Oxford St., Annandale, VA, 22003, call Jill Kagan at (703) 256-9578, or e-mail her at This e-mail address is being protected from spam bots, you need JavaScript enabled to view it

When you join the National Respite Network you are automatically a member of the National Respite Coalition, the Policy Division of the ARCH National Respite Network, and can receive the latest updates on Congressional legislative activity important to respite and the families you serve, as well as information from the states about program implementation. The National Respite Network is a program of the Chapel Hill Training-Outreach Project.

Contact:

Jill Kagan, MPH
Chair, National Respite Coalition
National Respite Coalition
Policy Division of the ARCH National Respite Network
4016 Oxford St.
Annandale, VA 22003
703-256-2084
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Click here for the NRC's Official Request for FY10 Funding

ObamaTransition Team Brief:

Click here for Lifespan Respite Issue Brief Presented to President-elect Obama's Transition Team (Dec. 2008).


Congressional Letter of Support for Funding of Lifespan Respite Act (PL109-442):
House

National Organizations Supporting Lifespan Respite Appropriation

State and Local Organizations Supporting Respite Appropriation



Congratulations to the California Respite Assn. for a successful 2009 National Respite Conference
Click here for access to the presentations.

Please Note:
The 2010 National Respite Conference will be hosted by the Maryland Respite Care Coalition (MRCC) in Baltimore, MD
October 24-27


2008 Kagan Testimony to House Subcommittee

Click here to contact
Your State Respite Coalition

Click here to locate your elected officials

Click here for a copy of the Lifespan Respite Act (PL 109-442)

PL 109-442 Section by Section

Timelines for PL 109-442 Implementation

House Report for
PL 109-442


The Lifespan Respite Task Force is a group of prominent organizations that has played a major role in the development and promotion of the Lifespan Respite Act that was signed into law in December 2006. Click here for more information.



Respite Start-up Manuals:

 

 

Join the ARCH Listerve and receive legislative updates and other timely information about respite care. Click the red box below. Enter your email address in the yellow box when it appears and click submit.


Cost Savings Due to Respite

ARCH Lifespan report - "Statewide Lifespan Respite Programs: A Study of 4 State Programs" (Aug. 2004)


Child Abuse and Neglect Prevention:

FRIENDS - Benefits of Planned and Crisis Respite Care

FRIENDS - Respite in community-Based Grants for the Prevention of Child Abuse and Neglect (CBCAP).
Links:

Aging and Disability
Resource Centers

 

ARCH Fact Sheets

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Contact your Senators and Representatives

Contact your state's Respite Coalition

2006 Met Life Study on Family Caregiver Costs

1997 Met Life Study of Employer Costs for Working Caregivers

 

 


 


 


 


 

 

 

 


 


 


 



 








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