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New: Webinar: Tools for Collaboration
New: Lifespan Respite State Grant Updates
Recording and Materials for Webinare:"Respite in the Faith Community"
Results of the New Grantee T/TA Assessment:
ARCH Advisory Committee Members
New: Lifespan Respite State Grantee Contacts
Overview of the new T/TA Network for Lifespan Respite
Webinar, Lifespan Respite 101
Staff
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ARCH Lifespan Respite
Training and Technical Assistance
In September 2009, the ARCH National Respite Network was awarded a three‐year cooperative agreement with the US Administration on Aging to provide training and technical assistance to the growing Lifespan Respite Network, its stakeholders and partners, and state respite coalitions. The cooperative agreement was awarded in partnership with the highly regarded Family Caregiver Alliance in San Francisco, which will be providing training and technical assistance primarily to the Aging Network on broader caregiving issues. Together they form the The Technical Assistance Centers for Caregiver Programs & Lifespan Respite
Visit this site to subscribe to the Centers’ Newsletter: Click here.
Also, at about the same time, the AoA funded twelve states to establish or enhance Statewide Lifespan Respite Systems and ARCH will stand ready to assist them with training and technical assistance as well. ARCH will resume its previous title of ARCH National Respite Network and Resource Center.For more information on this initiative, please click here.
Over the next three years, ARCH plans to:
Conduct state site visits to assist with State Lifespan Summits to help states build or strengthen coalitions and prepare state agencies to apply for federal Lifespan Respite grants in the future;
Update a selection of ARCH respite fact sheets that have proven most useful over the years and develop new fact sheets as needed on topics across age and disability categories;
Update and/or prepare new documents and guidebooks, and conduct Webinars on topics such as Federal Respite Funding Opportunities, Building Coalitions and Sustaining Collaborations, Evaluation, Marketing and Public Awareness, Volunteer and Rural Respite, respite for special populations, and more;
Redesign the ARCH web pages, especially the National Respite Locator Service, to be more user and consumer friendly and add new content. including a repository for respite training curricula and links to specific state resources;
Bring ARCH into the modern digital age with use of web‐based training, Facebook communication, Blogs, and other networking techniques;
Conduct ongoing needs assessments of ARCH and State Lifespan Networks to assess new training and TA needs; and be available for phone and email consultation as needed or to help family caregivers find respite.
We need your ideas! Please respond to our
T/TA Needs Assessment. Click here.
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Recorded August 12, 2010 (1 hour and 3 minutes).
Tools for Collaboration: Building and Sustaining Partnerships for Lifespan Respite
For background and resources, click here
Please give us your feedback, click here.
At the heart of Lifespan Respite is the concept of collaboration. Throughout the Lifespan Respite Care Act, and in the federal program guidance, references are made to collaboration and coordination among various stakeholders at the federal, state and local levels. This webinar will explore the history, successes, and challenges of collaboration among state agencies, state respite coalitions, and Aging and Disability Resource Centers. While the lessons to be learned will be most useful for those directly involved in planning and implementation of State Lifespan Respite programs and state respite coalitions, others working in social service, long-term services and supports, and health systems will benefit as well.
Speakers:
Barbara Snyder
Director of Corporate & Foundation Relations
Easter Seals Delaware & Maryland's Eastern Shore
61 Corporate Circle
New Castle DE 19720
302-324-4444 x. 2051
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Ms. Snyder was instrumental in helping to establish the DE Caregiver Coalition in 2003 and now directs the DE Lifespan Respite Network.
Barbara Schwartz
Illinois Department on Aging
421 East Capitol Avenue #100
Springfield, IL 62701
217/524-5327
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Ms. Schwartz is the Illinois Department on Aging Project Supervisor for the federally-funded Lifespan Respite Grant and oversees the Caregiver, Kinship and Intergenerational programs for the Department.
Joseph Lugo
Aging Services Program Specialist
Administration on Aging
US Department of Health and Human Services
Washington, DC
(202) 357-3417
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Mr. Lugo is the federal program officer for the Aging and Disability Resource Center Program at AoA.
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Recorded June 3, 2010
Webinar: " Respite in the Faith Community"
After viewing the webinar, please give us your feedback on this survey.
The shortage of respite providers continues to be a significant barrier to respite access in many communities. At the same time, government funding for social services is shrinking. Turning to the private volunteer sector for assistance makes increasing sense. The faith-based community has a long history of supporting family caregivers through respite and can offer assurances to family caregivers who are often reluctant to ask for help or mistrustful of other outside agencies. This Webinar provides an overview of national models of interfaith caregiving, and an overview of innovative yet practical approaches that local faith-based congregations and communities can take to provide respite to family caregivers caring for children, adults, and the aging population. A “benevolence fund” voucher method will be highlighted. In addition, a volunteer respite program run by Lyngblomsten in St. Paul, MN, for individuals with early to mid-stage memory loss that is being nationally replicated by Lutheran Services of America is described, and a family caregiver shares her experiences with this program.
Presenters:
W. C. Hoecke (pronounced "heck-uh"), M.Ed., is spouse of Catherine and father of three children, one with special needs. WC pastored in Columbia for twelve years; for ten years, he volunteered as a support parent with Family Connection and helped coordinate Up on Downs (a support group for parents of children with Down syndrome). W.C. is currently the director of the South Carolina Family to Family Health Information and Education Grant at Family Connection. W.C. has led Fathers Network (a network of fathers of children of varying disabilities), and coordinates Family Connection’s Faith In Action Respite Project. He has worked for the past ten years finding respite solutions for South Carolina families. He served as a founding Board member of both the SC Respite Coalition, which is now collaborating with the AoA-funded SC Lifespan Respite Program, and the SC Fatherhood Practitioners Network W.C. is an often requested national spokesperson on these issues, a frequent conference keynoter and national trainer in fatherhood, respite, marriage, and faith-based initiatives.
Carolyn Klaver, RN, with 26 years of nursing experience, including nine years as a Parish Nurse, is the coordinator of the prize-winning respite program "The Gathering" for Lyngblomsten. Lyngblomsten, organized in 1906 by Norwegian women, is a nonprofit social ministry organization with the Evangelical Lutheran Church in America, providing quality care through its healthcare, housing facilities, and outreach programs. The Gathering provides respite for family caregivers of people with early to mid-stage memory loss. It is funded by the Brookdale Foundation and is being replicated nationally by Lutheran Services of America. With 24 church partners representing eight denominations, “The Gathering” relies on more than 200 volunteers and utilizes eight church sites in the Minneapolis-St.Paul area.
Sherry Simpson, family caregiver and a respite consumer at “The Gathering,” St. Paul, MN. Sherry and her husband Don, for whom she has been a caregiver for five years, will be celebrating their 25th wedding anniversary in September 2010. They love spending time with their nine grandchildren, traveling, playing golf and spending time with friends and neighbors.
Materials:
- Power Point Slides (Click here). Quickly print slides with this thumbnail version: (Click here).
- ARCH Fact Sheet (Click here): Respite and the Faith Community: This fact sheet is an update of an earlier ARCH fact sheet highlighting the reasons and the practical applications for faith-based congregations and communities to come together to provide respite. New national models are highlighted with lessons learned over the last two decades.
- Church Benevolence Policy (Click here): This tool provides the policy and direction needed for faith-based communities to offer voucher respite programs
- Finding Caregiver and Respite Providers (Click here): This guide, based on the Partner Plus curriculum, and updated by Family Connection of South Carolina and the South Carolina Respite Coalition, provides practical yet in-depth advice on how to find and train respite providers for families caring for a child or adult with special needs.
- Questions and Answers (Click here).
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Webinar: "Lifespan Respite 101"
Webinar Recorded, March 3, 2010 (1 hr, 32 min.)
This Webinar provides an introduction to Lifespan Respite, including Lifespan Respite legislation, the US Administration’s (AoA) role in implementation, best practices in State Lifespan Respite Programs, and information to help you plan for a Lifespan Respite System in your state. For more information about this webinar, the presenters, the agenda and other information click here.
Resources: "Lifespan Respite 101"
You can access the Power Point slides by clicking here.
Please give us your feedback about this webinar by clicking here.
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NEW! FY10 AoA Program Announcement (RFP) AoA_PA.doc
On April 8, 2010, the Administration on Aging released this program announcement making FY 2010 funds available to states for Lifespan Respite Grants. Eligible state entities include State agencies that administer the Older Americans Act, state agencies that administer Medicaid, or a state agency designated by the Governor. State agencies must work in partnership with Aging and Disability Resource Centers and in mandated collaboration with a State Respite Coalition or organization. With these funds, states must implement state and local Lifespan Respite programs, which are defined in the law as “Coordinated systems of accessible, community-based respite care services for family caregivers of children or adults with special needs”. Deadline for AoA’s receipt of Lifespan Respite applications is June 7, 2010.
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NEW: AoA Lifespan Respite Fact Sheet
The US Administration on Aging prepared this fact sheet in 2009 to provide background on the newly implemented Lifespan Respite Program and to provide AoA’s vision for the program.
The Lifespan Respite Care Act was modeled on state Lifespan Respite programs in OK. WI, NE and OR that were already up and running, with AZ passing Lifespan Respite legislation in 2007. Each program focuses on a coordinated method for respite service delivery and funding, yet each program has unique characteristics. This comparative table provides an easy look at the differences and similarities between these model state programs and allows other states to choose which characteristics they might want to incorporate into their own state Lifespan Respite Program.
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Application as Collaborative Tool
For States to receive a federal grant to implement a Lifespan Respite Program, they must compete for funds by completing an application to be submitted to the US Administration on Aging (see AoA Program Announcement). The Lifespan Respite law requires very specific information be included in the application. Compiling this information for the application will require research, documentation, and planning, which presents opportunities for state respite coalition, Aging and Disability Resource Center, and state agency collaboration early in the implementation process. This fact sheet provides details on what is required by law for the application as well as suggestions for how each partner could be most helpful with any or all of the application requirements.
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Building Blocks for Respite: Federal Funding Opportunities This issue brief summarizes federal funding information from previous ARCH products including Funding for Adult Respite, and updates it to provide brief descriptions of all federal funding resources available, or potentially available, to states to support respite services for all ages and disabilities. This information is useful to state agencies and state respite coalitions trying to identify potential partners/respite resources at the state level, as well as important information for respite providers and others seeking funding for their own programs or for the family caregivers they serve.
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UPDATED: Model State Lifespan Respite Programs
This fact sheet provides a summary of the original ARCH study, Statewide Lifespan Respite Programs: A Study of Four State Programs with updated information on the current status of and contact information for the original four Lifespan Respite states, as well as Arizona’s recently implemented program
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Lifespan Respite Grant Updates
Getting to Know the Lifespan Respite Grantees, Part 1
Getting to Know the Lifespan Respite Grantees, Part 2
Newsletter Article, July 2010
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Lifespan Respite Legislative History
Public Law PL109-442, Lifespan Respite Act of 2006
Section-by-Section Summary of the Act
Congressional Record of House and Senate Floor Statements on Passage of Lifespan Respite Care Act - December 2006This document provides the actual transcribed Congressional Floor Statements of key Senators and House Members as they debated final passage of the Lifespan Respite Care Act in 2006. These floor statements, which carry the weight of law, provide critical information on Congressional intent for how the federal government, as well as states, are expected to implement Lifespan Respite programs.
House Energy and Commerce Committee Report on Lifespan Respite Care Act (Sept. 2006)
The House Committee report is the only Congressional Report in the legislative history of the Lifespan Respite Care Act. It carries the force of law and elaborates on Congressional intent, especially related to who is to be served by state lifespan respite programs and how the program is to be administered at the state and federal levels.
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Building Statewide Respite Coalitions
Building a Statewide Respite Coalition: Where Do We Begin?
This guide is intended to assist those states or groups that are considering forming coalitions by providing the tools necessary to begin building a state respite coalition. Although the focus is on respite coalitions in particular, the material can be used for building any coalition. The workbook was updated in 2009 to include additional references, more state examples, and the latest information on the Lifespan Respite Care Act and implications for State Respite Coalitions.
Compendium of Fact Sheets related to State Coalitions
This compendium of fact sheets provides a state-by-state look at 15 of the 25 state respite coalitions that are affiliated with the ARCH Network (See State Respite Coalitions). Each fact sheet contains the following information on each state respite coalition: Start-Up Process and Coalition History; Structure; Staff; Funding; Membership; Meetings and Communication; Major Activities; Available Documents (Bylaws, Strategic Plans, Surveys, Brochures, etc.); and State Contact Information.
The compendium should be useful for state respite coalitions to educate their members and prospective members, family caregivers, funders, legislators and other policy makers about the resources they have available to provide assistance within their own states (each fact sheet has been formatted to stand alone as a separate document). The compendium provides meaningful guidance for new state respite coalitions just getting started or to family caregivers , providers, state agencies or community-based organizations thinking about starting a new state respite coalition
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Staff:
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Jill Kagan, MPH
Chair, National Respite Coalition
Program Director,
ARCH National Respite Network and Resource Center
4016 Oxford St.
Annandale, VA 22003
703-256-2084
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Maggie Edgar, RN, MSW
Senior Consultant,
ARCH National Respite Network and Resource Center
807 N. 50th Street
Seattle, WA 98103
206-632-5208
206-547-1905 FAX
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ARCH is Now on Facebook and Twitter
 
AoA annouces new 2010 RFP (Program Announcement). Click here.
The US Administration on Aging (AoA) has funded 12 states to develop and implement Lifespan Respite programs.
Click here for more information
States with AoA Lifespan Respite Funding:
Alabama
Arizona
Connecticut
Tennessee
Texas
Mark your Calendar:
the Maryland Respite Coalition will be hosting the 2010 National Respite Conference in Baltimore, October 24-27.
click here.
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PROGRAMS